VHL Family Alliance
171 Clinton Road
Brookline, MA 02445
1-800-767-4845
(617) 277-5667
http://www.vhl.org
• Provides current information on von Hippel-Lindau syndrome, an inherited cancer that may cause tumors of the retina as well as other parts of the body. Coordinates an international network of family support groups. Publishes the VHL Family Forum (newsletter).

Vision of Children Foundation
12730 High Bluff Drive, Suite 250
San Diego, CA 92130
(858) 799-0810
http://www.visionofchildren.org
• Dedicated to curing childhood hereditary blindness, including ocular albinism and other related genetic vision disorders. Sponsors genetic research to gain scientific understanding and develop therapies and cures for these conditions. Provides information and support to families of blind and visually impaired children and to other organizations and service providers. Seeks to increase awareness among parents and medical practitioners of the warning signs of ocular diseases in newborns. Works to develop the first Patient Database Registry for ocular albinism and other genetic vision disorders.

VISION USA
1-800-766-4466
http://www.aoa.org/visionusa
• Coordinated by the American Optometric Association (AOA). Provides free eye care to uninsured, low-income workers and their families.

VISIONS/Services for the Blind and Visually Impaired
500 Greenwich Street, 3rd Floor
New York, NY 10013-1354
1-888-245-8333
(212) 625-1616
http://www.visionsvcb.org
• Offers free services to adults over age 55 and teens with severe vision problems. Services include self-help study kits, counseling, vision rehabilitations training, consumer workshops, and an information center. Provides volunteer and overnight camp services for blind and visually impaired adults and elders and parents of blind children.