National Association for Parents of Children with Visual Impairments
P.O. Box 317
Watertown, MA 02471
1-800-562-6265
(617) 972-7441
http://www.spedex.com/napvi/
• Offers emotional support for parents of blind or visually impaired children. Provides information, training and assistance, and help in understanding and using available resources. Publishes Awareness, a quarterly newsletter.

National Association for Pseudoxanthoma Elasticum
8764 Manchester Road, Suite 200
St. Louis, MO 63144-2724
(314) 962-0100
http://www.napxe.org
• Provides information on pseudoxanthoma elasticum (PXE), a systemic disease that causes the body to produce defective connective tissue, and in the eye may cause retinal disease. Publishes a newsletter.

National Association for Visually Handicapped
22 W. 21st Street, 6th Floor
New York, NY 10010
(212) 889-3141
(212) 255-2804
http://www.navh.org
• Serves as a clearinghouse for information about all services available to the partially-sighted from public and private sources. Conducts self-help groups. Provides information on large print books, textbooks, and educational tools.

National Cancer Institute (NCI)
National Institutes of Health
Public Inquiries Office, Suite 3036A
6116 Executive Boulevard, MSC8322
Bethesda, MD 20892-8322
(301) 435-3848
1-800-422-6237
1-800-332-8615 (TTY)
http://www.nci.nih.gov
• Conducts and supports research on cancer. Offers information for the general public and cancer patients and their families, including materials on ocular melanoma and retinoblastoma.

National Center for Complementary and Alternative Medicine (NCCAM)
National Institutes of Health
P.O. Box 7923
Gaithersburg, MD 20898
1-888-644-6226 (NCCAM Clearinghouse)
1-866-464-3615 (TTY)
http://nccam.nih.gov
• Supports research and evaluation of unconventional medical practices and disseminates this information to the public.

National Dissemination Center for Children with Disabilities
P.O. Box 1492
Washington, DC 20013
1-800-695-0285
(202) 884-8200
http://www.nichcy.org
• Serves as a national information and referral clearinghouse on special education and disability-related issues. Provides information on local, state, or national disability groups for parents and professionals. Emphasizes parent group information. Offers personal responses to public inquiries. Provides prepackaged information to frequently asked questions. Gives technical assistance to parent and professional groups.

National Eye Institute (NEI)
National Institutes of Health
31 Center Drive MSC 2510
Bethesda, MD 20892-2510
(301) 496-5248
http://www.nei.nih.gov
• Conducts and supports research on eye diseases and vision disorders. Offers free publications for the general public and patients.

National Family Association for Deaf-Blind (NFADB)
111 Middle Neck Road
Sands Point, NY 11050
1-800-255-0411
http://www.nfadb.org/
• Serves as the largest national network of families focusing on issues surrounding deaf blindness.

National Federation of the Blind
1800 Johnson Street
Baltimore, MD 21230
(410) 659-9314
http://www.nfb.org
• Provides a wide variety of services to visually impaired people. Works with agencies and blind people they serve to provide a cost-effective pathway to jobs with good earnings and benefits. Publishes the Braille Monitor and Future Reflections. Distributes a catalog of publications available in large print, Braille, or audiocassette, and a catalog of aids and appliances.

National Graves' Disease Foundation
P.O. Box 1969
Brevard, NC 28712
(828) 877-5251
http://www.ngdf.org
• To provide current medical information and referral and resource information to people with Graves' disease, a leading cause of overactive thyroid. Publishes a periodic newsletter. Coordinates public and professional education on Graves' disease.

National Heart Lung and Blood Institute (NHLBI)
National Institutes of Health
31 Center Drive MSC 2480
Bethesda, MD 20892-2480
(301) 592-8573
(240) 629-3255 (TTY)
http://www.nhlbi.nih.gov
• Conducts and supports research related to the causes, prevention, diagnosis, and treatment of heart, blood vessel, lung, and blood diseases; and sleep disorders. Distributes information on sarcoidosis.

National Institute of Allergy and Infectious Diseases (NIAID)
National Institutes of Health
Building 31, Room 7A-50
31 Center Drive MSC 2520
Bethesda, MD 20892-2520
(301) 496-5717
http://www.niaid.nih.gov
• Supports research aimed at developing better ways to diagnose, treat and prevent infections, immune system diseases, and allergies. Offers information on HIV infection and AIDS, including cytomegalovirus (CMV) retinitis. Co-sponsors the AIDS Clinical Trials Information Service (1-800-874-2572; (301) 519-0459; http://www.actis.org). Also see Centers for Disease Control and Prevention for information on AIDS/HIV.

National Institute of Arthritis, Musculoskeletal and Skin Diseases (NIAMS)
National Institutes of Health
Building 31, Room 4C02
31 Center Drive MSC 2350
Bethesda, MD 20892-2350
1-877-226-4267
(301) 496-8190
http://www.niams.nih.gov
• Conducts and supports research on the many forms of arthritis and diseases of the musculoskeletal system (bones) and the skin. Distributes information on temporal arteritis (giant cell arteritis) and Behcet's disease . Also publishes Questions & Answers about Sjogren's Syndrome.

National Institute of Neurological Disorders and Stroke (NINDS)
National Institutes of Health
P.O. Box 5801
Bethesda, MD 20824
1-800-352-9424
(301) 496-5751
http://www.ninds.nih.gov
• Conducts and supports research on disorders of the brain and nervous system. Distributes information on topics including Behcet's disease, dyslexia, headache, multiple sclerosis, pseudotumor cerebri, septo-optic dysplasia, stroke, temporal arteritis (giant cell ateritis) and von Hippel-Lindau disease.

National Institute on Aging (NIA)
National Institutes of Health
31 Center Drive MSC 2292
Bethesda, MD 20892-2292
(301) 496-1752
http://www.nia.nih.gov
• Promotes healthy aging by conducting and supporting research and public education. Distributes Aging and Your Eyes, part of the Age Page series.

National Institute on Deafness and Other Communication Disorders (NIDCD)
National Institutes of Health
31 Center Drive, MSC 2320
Bethesda, MD 20892-2320
Voice: (301) 496-7243
TTY: (301) 402-0252
Voice: (800) 241-1044
TTY: (800) 241- 1055
http://www.nidcd.nih.gov
• NIDCD supports and conducts research and research training on the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language and provides health information, based upon scientific discovery, to the public. Distributes Usher Syndrome, and Usher Syndrome: New Insights Lead to Earlier Treatment.

National Keratoconus Assistance Foundation (NKCAF)
203 Argonne Avenue, Suite B#444
Long Beach, CA 90803
info@nkcaf.org
http://www.nkcaf.org
• Provides referrals to eye care specialists best qualified to provide contact lens fittings for patients with keratoconus. Offers assistance in finding financial aid for eye care.

National Keratoconus Foundation
8733 Beverly Blvd., Suite 201
Los Angeles, CA 90048
1-800-521-2524
(310) 423-6455
http://www.nkcf.org
• Sponsors basic and clinical research as well as a public education program including self-help groups and seminars. Provides information to patients and eye care practitioners.

National Library of Medicine (NLM)
National Institutes of Health
U.S. Department of Health and Human Services
8600 Rockville Pike
Bethesda, MD 20894
1-888-346-3656
(301) 594-5983
http://www.nlm.nih.gov
• Maintains the world's largest medical library collection and coordinates MEDLINE, a database of millions of references to articles published in medical journals. Provides free online searching of the medical literature through MEDLINEPlus and links to health information topics on the eyes and vision. Provides a drug information guide to more than 9,000 prescription and over-the-counter medications. Maintains a clinical trials database for patients, family members, and members of the public.

National Library Service for the Blind and Physically Handicapped
Library of Congress
Washington, DC 20542
1-800-424-8567
(202) 707-5100
(202) 707-0744 (TDD)
nls@loc.gov
http://www.loc.gov/nls
• Provides free library service to individuals with visual impairments. Offers Braille and large print materials and recorded books and periodicals.

National Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050
1-800-862-7326
(516) 883-8712
http://www.marfan.org
• Disseminates information about Marfan syndrome, a genetic disorder of the connective tissues in which dislocated lenses, cataract, and retinal detachment are ocular symptoms. Provides a communication network for patients and their family members. Supports and encourages research. Publishes The Marfan Syndrome, a comprehensive booklet on the disease, and A Guide for Eye Care Professionals.

National Organization for Albinism and Hypopigmentation
P.O. Box 959
East Hampstead, NH 03826-0959
1-800-473-2310
(603) 887-2310
http://www.albinism.org
• Educates teachers, health care professionals, and the public about albinism and hypopigmentation. Provides support to individuals and their families. Encourages research on the cause, results, and treatment of the disorder. Maintains a speakers' bureau. Information packets are available on request.

National Organization for Rare Disorders
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
1-800-999-6673
(203) 744-0100
(203) 797-9590 (TDD)
http://www.rarediseases.org
• Acts as a clearinghouse for information about rare disorders. Fosters networks between families with similar disorders. Educates the general public and medical profession about the existence, diagnosis, and treatment of rare disorders.

National Retinoblastoma Support Group
P.O. Box 317
Watertown, MA 02272-0317
1-800-562-6265
(617) 972-7441
• Serves as an information source on genetics and treatment options related to retinoblastoma. Coordinates a patient network. Conducts conferences and meetings. Publishes a newsletter.